End of Life Carers Project

Photograph of Francis Tienga Ngale - Carer Support and Primary Care Liaison Worker

Francis Tienga Ngale – End of Life Carers Project Manager

End of Life Carers Project

Carers Network’s End of Life Carers Project is a 3 year project funded by the City Bridge Trust. It provides specialist services for carers aged over 65 looking after someone approaching the end of their life.

The project offers tailored (emotional, practical and psychological) support and information to those carers; and delivers practical workshops and information sessions to help carers across Westminster and Hammersmith & Fulham.

Through this project we aim make the carers’ experience more positive and fulfilling; and make it more likely for the cared-for person to achieve their wishes such as their preferred place of care.

The End of Life Carers Project is now in its third year. A review of the first two years has highlighted the need for services that specifically help support the needs of carers looking after someone nearing the end of their life. Read the review here

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RESOURCES

Writing a Will

Earlier in 2016 carers in Westminster and Hammersmith & Fulham attended a Will writing workshop

Find out more information on writing a will and download a guide here

Notification After Death

When someone dies there are many people to be informed, including various companies and organisations.

Find out more information and download a guide here

Lasting Power of Attorney?

A Lasting Power of Attorney is a legal document, which allows YOU (the person wishing to create such document) to choose a person or persons to make decisions on your behalf if you are ever unable to do so.

Find out more information and download a guide here

Advance Decison

An Advance Decision to Refuse Treatment (sometimes known as Advance Decision, Advance Directive or Living Will) is simply a decision to refuse specific treatment at some time in the future.

Find out more information and download a guide here

Advance Care Planning – Taking care of your Future Workshops

The materials from the Advance Care Planning – Taking care of your Future Workshops in Westminster on 25 March 2015 and Hammersmith on 2 April 2015 are now available to download:
Gentle Dusk Powerpoint Presentation
Gentle Dusk Advance Care Plan

Bereaved Carer Support Group

Grieving over the death of someone we love and/or care for is a personal and highly individual experience, but knowing how other carers are dealing and have dealt with it may be very helpful. This support group is a safe, informal and friendly environment where carers can receive and offer support to each other and share knowledge, experiences, thoughts and emotions.

When: Every 3rd Thursday of the Month, 2:00 – 4:00 PM
Where: Bishop Creighton House, 378 Lillie Road, SW6 7PH

Please call Carers Network to let us know if you want to attend on: 020 8960 3033 or email: francis@carers-network.org.uk

Download flyer here

Latest newsA significant minority of people – at least a fifth of everyone who dies – are not receiving the palliative care they need. A study by the London School of Economics on equity in palliative care, funded by Marie Curie, also found that some groups are less likely to receive this care than others. Further information here

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Who is the End of Life Carers project aimed at?

This project is primarily for carers aged 65 or over providing unpaid care to a friend or relative who:

  • Has been diagnosed with a terminal illness, or
  • Is 80 or over, and has general frailty and co-existing conditions
  • Is in residential or nursing home

Carers under 65 who are looking after a friend or relative – who falls within the above criteria – can also receive support from Carers Network outside the scope of this project by a designated Carer Support Worker with the support of the End of Life Carers Project Manager

How our project will help carers:

This project started on October 1st, 2014 and involves:

  • Helping carers prepare better for their cared-for person’s end of life
  • Helping carers to have or/and maintain a life of their own alongside their caring responsibilities
  • Providing carers with a reliable service which meets the individual requirements and desired outcomes of both the carer and the person they are caring for
  • Supporting carers in their caring role, thus enabling the cared for to spend their remaining days in their own homes
  • Helping carers have a break from the caring role, thus enabling them to pursue desired activities such as health and leisure activities, academic learning and training, and to enable working carers to remain in work
  • Helping carers with advanced planning of dying, death and bereavement
  • Helping ensure that carers are able to exercise choice and control

Workshops and Information Sessions

Our workshops and information sessions are designed to provide carers with the skills and confidence to help them in their caring role. They are tailored – with the input of carers and relevant professionals – to the needs of local carers and cover a variety of topics including:

  • Condition-specific information and end of life choice
  • Funeral arrangement
  • End of Life and spirituality/culture
  • Entitlement to benefits and other financial and legal advice
  • Carers needs assessment
  • How to start talking about dying
  • Carers’ transition planning at the end of their caring role

Local partners:
The project also work with other relevant organisations and professionals such as the local NHS GP Clinical Commissioning Groups, Dementia Services, Hospices, Palliative Care Services, Local Community Healthcare Providers, GP Practices, Local Community & Voluntary Organisations, as well as carers and ex-carers, to promote support and understanding of End of Life Carers’ needs, raise awareness and promote conversation about death, dying and bereavement; and furthermore to develop a best practice guide for the benefit of carers of people nearing the end of their life.

Find out more

We are working with GP surgeries, hospices, Macmillan Nurses, Admiral Nurses, Hospitals, Community Matrons and other end of life care professionals to help us reach carers who are in need of support.

So if you would like to:

  • Find out more about the project;
  • Share your experience of caring for someone at the end of their lives;
  • Give us your views on what sort of support or information you think such a carer may like or find of help to their life and that of their cared-for person;
  • Be a befriending volunteer for carers looking after a End of Life relative or friend, then:

Please contact our End of Life Carers Project Manager, Francis Ngale, by phoning
020 8960 3033 or emailing Francis@carers-network.org.uk

 

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Supporting unpaid carers, changing lives across London.

Our vision is that every unpaid carer in the areas in which we operate is recognised and leads a healthy, fulfilling life with control over their caring role. 


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